Not much to report today. Weekends are usually just a waiting game to see how well I can feel until Monday.
Eating today, I discovered this odd relationship between hot foods and the right side of my lower lip. After eating hot soup and then chili later in the day, my lip became numb like it was hit with Novocaine. It goes away soon after eating.
That hip joint pain is significant today, but that topic is getting old for this blog.
Sunday, October 7, 2012
Friday, October 5, 2012
5 October 2012 - New Surgery Date
I went for platelets today... afternoon session after a work meeting.. and got the call that my surgery date is moved to 26 October, with a 25 October consultation. A two week shift. Mixed feeling about that. I was looking forward to getting that out of the way and moved into the past. But, more time gives the rituximab a chance to kick in more. Okazaki seemed a little indifferent to that theory. I think he realizes I just don't respond to these things. So, anyway... 25-26 October.
Platelet count was 4 before the transfusion. Hemoglobin still low. Monday will be platelets and red blood cells.
Platelet count was 4 before the transfusion. Hemoglobin still low. Monday will be platelets and red blood cells.
Wednesday, October 3, 2012
3 October 2012 - Casey's Birthday!!!!
I started my day with the platelet IV followed by three vaccination shots to ward off pneumonia strains, some kind of influenza and meningitis. My arm feels GREAT. Also had an EKG to check the heart for abnormalities, etc.
P-Count was 4. That was disappointing, but nothing new.
Go A's! That's got nothing to do with my physical health, but adds some to the mental state of being.
It was good to get some work done too, thought it wasn't much more than talking.
Surgery information is trickling in. Apparently, I get a catheter in an artery leading up to my spleen to shut off the bleeding... my primary care guy noted that they use an intentional embolism to close it off. That's a bit different than the specialist described... gotta do some reading. This happens on the 11th and then spleen removal and disposal occurs on the 12th. No times yet. Will investigate further tomorrow with the nurse in Oahu.
P-Count was 4. That was disappointing, but nothing new.
Go A's! That's got nothing to do with my physical health, but adds some to the mental state of being.
It was good to get some work done too, thought it wasn't much more than talking.
Surgery information is trickling in. Apparently, I get a catheter in an artery leading up to my spleen to shut off the bleeding... my primary care guy noted that they use an intentional embolism to close it off. That's a bit different than the specialist described... gotta do some reading. This happens on the 11th and then spleen removal and disposal occurs on the 12th. No times yet. Will investigate further tomorrow with the nurse in Oahu.
Tuesday, October 2, 2012
2 October 2012
No medical news today. Still waiting to get information about the surgery later next week.
I woke up feeling good after a decent sleep with a large pillow between my knees. Good advice that's worked for one night so far.
Last night was a milestone because after driving my truck around the block solo to test out my fortitude, we ventured for food at night with me driving and it went well. The driving assessment was pretty good and so today, I drove to work to hit a couple meetings and catch up with some key clients. Took off after about a six-hour day and now I can relax this afternoon and enjoy some PT exercises.
I woke up feeling good after a decent sleep with a large pillow between my knees. Good advice that's worked for one night so far.
Last night was a milestone because after driving my truck around the block solo to test out my fortitude, we ventured for food at night with me driving and it went well. The driving assessment was pretty good and so today, I drove to work to hit a couple meetings and catch up with some key clients. Took off after about a six-hour day and now I can relax this afternoon and enjoy some PT exercises.
Monday, October 1, 2012
1 October 2012
IV treatment today for platelets.
The arm "infection" is now being postulated to be some kind of fungus, possibly a ringworm thing. No idea how that comes up on my forearm, but there it is. Waiting for a doctor to come in and verify.
Hemoglobin at 8.5 (up from 7.7 earlier). That seems like a mediocre increase considering the two units on Friday. Rituxin is still messing with me I think. Platelets at 6K... better than the typical 3 on a Monday. Plenty of indicator sores in my mouth and dots on my legs. I think the yard work (minimal as it was) this weekend was a bit too much.
Solicited more details on the upcoming surgery from the main nurse Sandie. Times, names, etc. Hopefully she gets back with me soon.
The arm "infection" is now being postulated to be some kind of fungus, possibly a ringworm thing. No idea how that comes up on my forearm, but there it is. Waiting for a doctor to come in and verify.
Hemoglobin at 8.5 (up from 7.7 earlier). That seems like a mediocre increase considering the two units on Friday. Rituxin is still messing with me I think. Platelets at 6K... better than the typical 3 on a Monday. Plenty of indicator sores in my mouth and dots on my legs. I think the yard work (minimal as it was) this weekend was a bit too much.
Solicited more details on the upcoming surgery from the main nurse Sandie. Times, names, etc. Hopefully she gets back with me soon.
28 September 2012
Today was supposed to be a platelet treatment, but it expanded. Two units of red blood cells to address a low hemoglobin reading. This is supposedly what's causing my unsteady head the past few days. I'm glad this week was the last Rituxin treatment. The whole thing took all day because we waited for the blood bank to come up with the blood.
There's also this spot forming on my arm that looks infected. No idea what it is. Theories abound, but possible skin infection of some kind. "Just cover it and don't touch it"
The Fair has started but I'll stay away. Too many germs I would think.
There's also this spot forming on my arm that looks infected. No idea what it is. Theories abound, but possible skin infection of some kind. "Just cover it and don't touch it"
The Fair has started but I'll stay away. Too many germs I would think.
27 September 2012
Not much happening today other than being uncomfortable and tired and dizzy. I targeted the day for some work, but failed to accomplish much along those lines.
Stanford U called. It seems they cannot verify the cavernous malformation diagnosis from the previous look at the CT Scan. Too much blurring in the MRI images, so I need a new MRI in six weeks. Looks like there are two options for that in Maui so I'll set them up at the one that isn't the hospital (assuming insurance likes that one of course).
Low hemoglobin has my head goofy, but tomorrow will address that with red cells supposedly.
Stanford U called. It seems they cannot verify the cavernous malformation diagnosis from the previous look at the CT Scan. Too much blurring in the MRI images, so I need a new MRI in six weeks. Looks like there are two options for that in Maui so I'll set them up at the one that isn't the hospital (assuming insurance likes that one of course).
Low hemoglobin has my head goofy, but tomorrow will address that with red cells supposedly.
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