26 September 2012

I have three failed IV pokes in my numb arm covered with gauze while I wait for somebody to get me hooked up well.  The day is starting well I guess.

They went to the other arm and got those platelets in.  Fun.  

P-Count at 7k prior to transfusion.  Better than the 3k last week following Rituxin.
Received bill from 1-5 September in hospital.  It was only $66K.  Can't wait to see what gets covered by insurance.

Felt okay for awhile until I decided to do some stretches and aggravated that bad nerve.  Lasted all night and affected sleeping. 

25 September 2012 (Tuesday)

Sitting in my IV chair at the Pacific Cancer Institute getting the last of four treatments using Rituxin.  It's about time this stuff kicked in...

Took shark liver oil pill on Tuesday morning.  Has some ingredients that claim to support this process.
Later on, felt pretty bad all day until night.  Hard time sleeping.  

24 September 2012

platelet monday... after 18 friday post-platelet infusion, 5 saturday and 5 monday.  seeing the flatness at 5 was nice but the boost up to 18 after a transfusion was pretty lame.  we'll see how wednesday is.

the physical therapy was a bit different today, with some focus on that nerve pain I was feeling yesterday.  i joked to lisa that i had electro-shock therapy but really it was an electronically-stimulated heating pad used to relax things... i think it actually helped some.  the pain is still there, but not as bad as yesterday.

took a shot at 3 hours of meetings today as well... one meeting lasting that long really.  made for a long day, but it was a useful effort. 

23 September 2012

Pain in my butt day... I think my sciatic nerve is being affected... possibly, I'm getting feeling back in my right leg, but the feeling is not kind.  It's along the same path that the original numbness occurred that tipped off this whole mess.  I tried some stretches.  Bending at the hip is difficult beyond a particular point.

Overall, it's a very uncomfortable day.  The forearm is starting to itch in some places, my shoulder feels like I got a shot, but I didn't.  The foot feels like I'm walking on a bunched up sock all day.  I can feel stickers I step on in the house brought in by Angel... so that's good.

It's a goofy-head day too.  Dizzy.  Spent a lot of time sitting on the couch.  There's a NCIS marathon showing, so that helps after the football earlier.  

Two days of blood tests with no phone calls.  Does this mean I have good results or a lazy doctor?  Not sure.  I'll find out tomorrow.  Stay tuned.

22 September 2012

Post-platelet day.  Got a blood test in the morning.  Enjoyed some Taco Bell for lunch... soft tacos, but I ordered the cheesy nachos and I think I tore up the roof of my mouth with those.  Ended the day feeling like I had a sore mouth.  I'm hoping some of that is feeling returning to the left side of my face and tongue. 

Going to try some yogurt this weekend.  Some time ago, there was some information I found about yeast abundance affecting platelet coagulation. 

21 September 2012

Sitting in my IV chair weighing the news of a low platelet count just one day after getting new ones.  Ugh.

Now the planning is all about the surgery to get my spleen (a splenectomy for those readers wanting to google the procedure).  Just got a call from the nurse... 11-12 October time frame in Oahu.  The surgeon wants me over there a day early to consult.  I suggested an earlier consultation via skype or other means.  We'll see if their procedures are flexible.  Pressing the limits.  Apparently, they tie off the artery to the spleen and that makes it a fairly bloodless operation.  A few days recovery. 

They need an EKG before surgery, so I'll do that.  I'll go get some vaccinations too that sets me up for the degraded future immunity.

What is this? 

20 September 2012

Physical therapy day.. took it a bit easier to avoid too much damage to the body.  Good hour of working things out.  It seemed like there was more random tingling going on in areas today.  I keep noticing things, but I think it's still wishful thinking.
Had the blood tested but didn't get the results.  Will have to round that up in the morning.
I need some sun.