What a blah drab blog this has been lately.. and sparse as well. What is the deal?
Today it's IV platelet day and I'm just hooked up. Hanging out watching a cooking show with some spicy meatballs being the primary feature.
Aches and pains have been the dominant force lately, affecting nighttime sleep and just about every other daily movement / activity. Tylenol PM has been a little helper in that the past two nights, affording me 4-hour blocks of rest and then some. The right side is really hyperactive lately, reacting to breezes and other stimuli and then stiffening in a way that grabs at me as if somebody is wrapping me up on that side with shrink wrap. Wrapping up in a thick blanket for a bit seems to calm that and the salt water swishes help the numb lip reactions. Tactics. That's what this is... an ongoing tactics development to address all these annoyances that pop up.
I got the letter from Stanford. They are ready to cut my brain open as soon as the platelet problem is fixed. Yay!
Treatment update. Still two-a-day CellCept pills working the immune suppression. The plan is to hit me with a N-Plate shot to help boost platelet production on Friday. That will be a weekly deal. Then, Monday will feature the first of monthly IVIG treatments to work against B-Cell effectiveness.
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Platelet count for today prior to transfusion = 1K. This is the lowest I have ever had so that was not good news. The IVIG will now be tomorrow. Doctor says to not panic and that my body has obviously figured out a way for clotting without platelets as evidenced by less bruising and marking on my skin.
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